ampyra

well i did it, i went to the neuro the other day to talk about going on the new drug amprya, so he signed the paperwork and i got the call from acorda pharmaceuticals,  it was great they did all the work, called my insurance company to see how much my copay is.  i i am hoping to start taking it at the end of this week or next week.  we shall see how it goes.  i told my neurologist that this whole ms and not walking good, is not working for me anymore.  i am sure you all can so understand that.  i miss walking, however  i am grateful i can still walk and drive, but i used to walk for the sake of walking and that is what i miss the most.  i will keep you updated on the ampyra

today is my friday! whoohoo

well even though i havent had anyone read this, which is ok, i thought i would write before i started working.  it is so nice out and have the windows open for fresh air, still dont know what to do with the left over chicken in the fridge, yet.  if anyone has ideas please let me know.  i have tomorrow and thurseday off which i am looking forward to.  except on thurseday morning i have to go to the peridontist for an eval to have some teeth fixed. but then i go to the neurologist in the afternoon to discuss a new med called ampyra that is out that is supposed to help us with ms walk better.  will let know how i make out.  they have copay assistance through the pharmetucal co, so we will see.  so on that note, anyone who reads this, reply if you dont, have a good day.

just dealing

i know it has been awhile since i wrote last, my hubby and i, and his family went out on lake winnipesauki last saturday on a boat and we had so much fun however i really should have done the whole sunscreen thing, but didnt and got burned,  i have been peeling ever since.  oh well, just being out in the sun was great.  so on monday i worked, got done, had a drink, and being me, decided to take my shot early.  normally that is not a problem, i have dinner, watch tv, brush the teeth, get ready for bed, and get the shot out to warm up.  i usually take an anti inflammatory before i take the shot.  then after, just relax and watch more tv, go to bed and read, and clunk. next day i am fine.  however monday i didnt do it that way.  i didnt drink enough fluids during the day, it was hot and humid out, took my shot earlier than i usually do, but i did take the tylenol.  i woke up at 2 or 3 in the morning and couldnt function, and i couldnt even get out of bed.  greg had to help me sit up, i could get my pants on and greg helped me out to the living room. i called into work sick for the day. and that is where i stayed for the majority of the day.  i felt better the next day, so it is good.  this week i am going back to my normal routine. 

living and dealing with ms

morning everyone, sitting here having a cup of coffee and getting ready to start work.  cat is fed and watered, just waiting for my husband to get up so i can make the bed.  let me tell you a little about myself.  i was diagnosed 3 years ago after greg and i moved to nh.  my doctor i had at the time didnt like the way i was walking and that is what started it all.  after i was officially diagnosed with this i think very annoying disease, that first summer i would mostly be grateful i was able to work from home.  but i sure did a lot of crying and wondering what i did to deserve this and i thought god was punishing me.  finally my daughter told me i should see a therapist which i still do and it is a big help.  i still work, though from home and grateful, i can still drive, and i still do things.  however, now i listen to my body when it says to me "you need to slow down and take it easy"  that was the hardest part for me to learn was the whole pacing myself.  so now it is 3 years later, still working, got back in touch with old friends, i still drive even though it is not very far, but i still do it.  we bought a new house and my husband made our bathroom with a really c ool shower stall so i dont have to step up and over the tub and kill myself.  i also adopted a cat that is my friend and keeps me company.  i also keep a journal which also helps.  so this is me, and i would love to hear from you.  signing out to start work